What does it mean to have fibromyalgia? 5 days till race.

jenna09By Jenna Grillo, TEAMAWARE driver

I am extremely happy that I am starting to get a lot of attention as my racing career continues to progress. I am using that attention to bring awareness to chronic pain and fibromyalgia. The NFA was founded in 1997, only a year after I was born. They have accomplished SO much in the last 19 years, but there are still a lot of things that we’re trying to accomplish in the fibromyalgia community.

One of the things that I hate most about fibromyalgia is the negative stigma surrounding it. It is absolutely astonishing how many times I have heard that people with fibromyalgia are making everything up. We’re making excuses to be lazy, and that the pain is all in our head, which is absolutely not true.

It’s clear to me that people just don’t understand what it means to have fibromyalgia, so I am here to teach people what it means. We are not lazy; we are not making it up. Every single part of our day is a battle. We fight to get out of bed every morning, we have to fight to leave the house and socialize with other people because the pain can be so debilitating at times. We have good days, and we have bad days, although to us sometimes it seems impossible to tell the two apart because even on the good days, we still feel pain. We feel so weak, but we don’t realize that we are much stronger than we may ever know. We are warriors, and we are more than the pain caused by fibromyalgia.

Stay hopeful and stay strong my fellow Fibro Fighters because hope is on the way at 150 miles per hour! Keep checking back leading up to the Awareness day race to hear more from me!