Non-Profit Organizations

Serving the Following Audiences:
patients

Patient Advocacy
Resource

doctors

Health Care
Provider
Resource

both docs and patients

Both Patient &
Health Care
Provider
Resource

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International Pain Foundation

patients

The International Pain Foundation (iPain) is your Power of Pain headquarters. We provide support services to pain patients and caregivers. These educational, awareness, social and access to care programs address the immediate need of chronic pain patients with conditions such as RSD, CRPS, Lyme, Lupus, Post Cancer Pain and Diabetic Neuropathy around the world.

www.internationalpain.org

Caregiver Action Network

The Caregiver Action Network

patients

The Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease.

www.CaregiverAction.org

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Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

patients

RSDSA is a national not-for-profit organization and  for over 30 years we have educated, supported, and provided HOPE to all those affected by CRPS/RSD while driving research for better treatments and a cure. Complex Regional Pain Syndrome (CRPS), also known as Reflex Sympathetic Dystrophy (RSD) is the most painful syndrome on earth; it is more painful than amputation of a digit or childbirth or even cancer and the pain is experienced 24 hours/seven days a week.

www.rsds.org

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Anxiety and Depression Association of America (ADAA)

both docs and patients

ADAA is the leading nonprofit organization dedicated to the prevention, treatment, and cure of anxiety disorders, depression, bipolar disorder, OCD, and PTSD through education, training, and research. Our mission focuses on improving quality of life for children and adults affected with these disorders.

www.ADAA.org

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Raynaud’s Association

patients

The Raynaud’s Association is a national non-profit (501c3) organization whose mission is to provide support and education to the millions of sufferers of Raynaud’s Phenomenon, an exaggerated sensitivity to cold temperatures. The Association seeks to raise awareness and educate the public about Raynaud’s, which can be painful and, for some, may cause serious blood vessel damage.

www.raynauds.org

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National Fibromyalgia Association

patients

The National Fibromyalgia Association is a nonprofit organization whose mission is to develop and execute programs dedicated to improving the quality of life for people with fibromyalgia. The NFA concentrates on patient services, awareness outreach, physician continuing medical education and research. The NFA produces informational materials, hosts a patient website (www.FMaware.org) and publishes the premiere interactive magazine, The NEW! Fibromyalgia AWARE.

www.FMaware.org

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American Migraine Foundation

both docs and patients

The American Migraine Foundation is a non-profit foundation supported by the American Headache Society and generous donors dedicated to the advancement of migraine research. The mission of AMF is to support innovated research and education that will lead to improvement in the lives in those who suffer from migraines and other disabling headaches.

www.americanmigrainefoundation.org

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The Spondylitis Association of America

patients

The Spondylitis Association of America (SAA) is a nonprofit organization founded in 1983 to address the needs of people affected by spondyloarthritis. Since that time, SAA has been at the forefront of the fight to promote medical research, educate both the medical community and general public and advocate on behalf of the people we serve.

www.spondylitis.org

The National Vulvodynia Association

National Vulvodynia Association

both docs and patients

The National Vulvodynia Association (NVA) is a nonprofit organization created in 1994 to improve the lives of individuals affected by vulvodynia, a spectrum of chronic vulvar pain disorders. The NVA educates patients and health care professionals, provides patient support services and listings of health care providers and supports critical medical research on vulvodynia.

www.nva.org

aasm

American Academy of Sleep Medicine

doctors

Established in 1975, the American Academy of Sleep Medicine is the professional society for sleep specialists. As the leader in the sleep field, the AASM improves sleep health and promotes high quality patient centered care by accrediting sleep disorders centers, setting standards, and promoting excellence in sleep medicine health care, education and research.

www.aasmnet.org

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Society of Behavioral Sleep Medicine

doctors

The Society of Behavioral Sleep Medicine is an interdisciplinary organization that sets the clinical and educational standards for the behavioral and psychological treatment of chronic insomnia and other sleep disorders. The SBSM unites psychologists, physicians, advance practice nurses, clinical social workers and other health care professionals who are passionate about improving public health by promoting healthy sleep.

www.behavioralsleep.org

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Endometriosis Association

patients

We are an international nonprofit organization founded by women for women with endometriosis, a chronic, painful hormonal/immune-system disease; The Endometriosis Association was the first endo patient organization. We work for:

1. Support to girls and women suffering from endometriosis;
2. Education for the public and for medical professionals.
3. Research to find better treatments, prevention, and a cure.

www.endometriosisassn.org

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HeadsUpGuys

patients

“HeadsUpGuys was created in partnership with the Movember Foundation and the University of British Columbia, Canada. It is a resource built to support men in their fight against depression by providing tips, tools, information about professional services, and stories of recovery.”

headsupguys.ca

Solve ME/CFS Initiative

patients

The Solve ME/CFS Initiative is the leading national organization focused on Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Through patient-centered research, the Solve ME/CFS Initiative works to make ME/CFS understood, diagnosable and treatable.

www.SolveCFS.org

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American Foundation for Suicide Prevention

both docs and patients

The American Foundation for Suicide Prevention is dedicated to saving lives and bringing hope to those affected by suicide. AFSP creates a culture that’s smart about mental health through education and community programs, develops suicide prevention through research and advocacy, and provides support for those affected by suicide with local chapters in all 50 states with programs and events nationwide.

http://afsp.org/

Oldways

both docs and patients
Oldways is a nonprofit food and nutrition education organization with a mission to inspire healthy eating through cultural food traditions and lifestyles, and through advocating for the healthful pleasures of real food. Oldways practical and positive programs include the Whole Grains Council; Oldways Cheese Coalition; Mediterranean Foods Alliance; African Heritage & Health; Oldways Nutrition Exchange; Oldways Supermarket Dietitian Symposium; and Oldways Culinary Travel; and the organization is well known for creating the Whole Grain Stamp and the Mediterranean Diet Pyramid.
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The TMJ Association

both docs and patients
The TMJ Association is a nonprofit patient advocacy organization whose mission is to improve the quality of health care and lives of everyone affected by Temporomandibular Disorders (TMD). For over 25 years we have shared reliable information on TMD and invite you to visit our website, www.tmj.org.
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Interstitial Cystitis Association

both docs and patients
The Interstitial Cystitis Association (ICA) is the only nonprofit charitable organization dedicated solely to improving the quality of healthcare and lives of people living with interstitial cystitis (IC). ICA advocates for IC research dedicated to discovery of a cure and better treatments, raises awareness, and serves as a central hub for the healthcare providers, researchers and millions of patients who suffer with constant urinary urgency and frequency and extreme bladder pain called IC.
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TNA-Facial Pain Association

both docs and patients
FPA serves as an advocate for patients suffering from trigeminal neuralgia (TN) and related facial pain conditions by providing information, encouraging research and offering support.
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Scleroderma Foundation

both docs and patients

The Foundation helps people with scleroderma – and their families – cope with the disease through support programs, physician referrals, and educational information.  The Scleroderma Foundation also promotes public awareness about scleroderma, and funds research to improve and discover the cause and cure.

 

http://www.scleroderma.org/

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Celiac Disease Foundation

both docs and patients

Celiac Disease Foundation drives diagnosis, treatment, and a cure for celiac disease through advocacy, education, and research to improve the quality of life for all people affected by gluten-related disorders.

 

www.Celiac.org

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National Multiple Sclerosis Society

both docs and patients

The mission of the National Multiple Sclerosis Society is for everyone affected by multiple sclerosis to live their best lives as we stop MS in its tracks, restore what has been lost and end MS forever.  As the gathering place for the MS community, the Society mobilizes all human and financial resources to ensure that people with MS and their families move their lives forward, while funding cutting-edge research, driving change through advocacy, facilitating professional education, and collaborating with MS organizations around the world.

 

www.nationalMSsociety.org