Non-Profit Organizations
Serving the Following Audiences:
Patient Advocacy
Resource
Health Care
Provider
Resource
Both Patient &
Health Care
Provider
Resource
International Pain Foundation
The International Pain Foundation (iPain) is your Power of Pain headquarters. We provide support services to pain patients and caregivers. These educational, awareness, social and access to care programs address the immediate need of chronic pain patients with conditions such as RSD, CRPS, Lyme, Lupus, Post Cancer Pain and Diabetic Neuropathy around the world.
The Caregiver Action Network
The Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease.
Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)
RSDSA is a national not-for-profit organization and for over 30 years we have educated, supported, and provided HOPE to all those affected by CRPS/RSD while driving research for better treatments and a cure. Complex Regional Pain Syndrome (CRPS), also known as Reflex Sympathetic Dystrophy (RSD) is the most painful syndrome on earth; it is more painful than amputation of a digit or childbirth or even cancer and the pain is experienced 24 hours/seven days a week.
Anxiety and Depression Association of America (ADAA)
ADAA is the leading nonprofit organization dedicated to the prevention, treatment, and cure of anxiety disorders, depression, bipolar disorder, OCD, and PTSD through education, training, and research. Our mission focuses on improving quality of life for children and adults affected with these disorders.
Raynaud’s Association
The Raynaud’s Association is a national non-profit (501c3) organization whose mission is to provide support and education to the millions of sufferers of Raynaud’s Phenomenon, an exaggerated sensitivity to cold temperatures. The Association seeks to raise awareness and educate the public about Raynaud’s, which can be painful and, for some, may cause serious blood vessel damage.
National Fibromyalgia Association
The National Fibromyalgia Association is a nonprofit organization whose mission is to develop and execute programs dedicated to improving the quality of life for people with fibromyalgia. The NFA concentrates on patient services, awareness outreach, physician continuing medical education and research. The NFA produces informational materials, hosts a patient website (www.FMaware.org) and publishes the premiere interactive magazine, The NEW! Fibromyalgia AWARE.
American Migraine Foundation
The American Migraine Foundation is a non-profit foundation supported by the American Headache Society and generous donors dedicated to the advancement of migraine research. The mission of AMF is to support innovated research and education that will lead to improvement in the lives in those who suffer from migraines and other disabling headaches.
The Spondylitis Association of America
The Spondylitis Association of America (SAA) is a nonprofit organization founded in 1983 to address the needs of people affected by spondyloarthritis. Since that time, SAA has been at the forefront of the fight to promote medical research, educate both the medical community and general public and advocate on behalf of the people we serve.
National Vulvodynia Association
The National Vulvodynia Association (NVA) is a nonprofit organization created in 1994 to improve the lives of individuals affected by vulvodynia, a spectrum of chronic vulvar pain disorders. The NVA educates patients and health care professionals, provides patient support services and listings of health care providers and supports critical medical research on vulvodynia.
American Academy of Sleep Medicine
Established in 1975, the American Academy of Sleep Medicine is the professional society for sleep specialists. As the leader in the sleep field, the AASM improves sleep health and promotes high quality patient centered care by accrediting sleep disorders centers, setting standards, and promoting excellence in sleep medicine health care, education and research.
Society of Behavioral Sleep Medicine
The Society of Behavioral Sleep Medicine is an interdisciplinary organization that sets the clinical and educational standards for the behavioral and psychological treatment of chronic insomnia and other sleep disorders. The SBSM unites psychologists, physicians, advance practice nurses, clinical social workers and other health care professionals who are passionate about improving public health by promoting healthy sleep.
Endometriosis Association
We are an international nonprofit organization founded by women for women with endometriosis, a chronic, painful hormonal/immune-system disease; The Endometriosis Association was the first endo patient organization. We work for:
1. Support to girls and women suffering from endometriosis;
2. Education for the public and for medical professionals.
3. Research to find better treatments, prevention, and a cure.
HeadsUpGuys
“HeadsUpGuys was created in partnership with the Movember Foundation and the University of British Columbia, Canada. It is a resource built to support men in their fight against depression by providing tips, tools, information about professional services, and stories of recovery.”
Solve ME/CFS Initiative
The Solve ME/CFS Initiative is the leading national organization focused on Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Through patient-centered research, the Solve ME/CFS Initiative works to make ME/CFS understood, diagnosable and treatable.
American Foundation for Suicide Prevention
The American Foundation for Suicide Prevention is dedicated to saving lives and bringing hope to those affected by suicide. AFSP creates a culture that’s smart about mental health through education and community programs, develops suicide prevention through research and advocacy, and provides support for those affected by suicide with local chapters in all 50 states with programs and events nationwide.
Oldways
The TMJ Association
Interstitial Cystitis Association
TNA-Facial Pain Association
Scleroderma Foundation
The Foundation helps people with scleroderma – and their families – cope with the disease through support programs, physician referrals, and educational information. The Scleroderma Foundation also promotes public awareness about scleroderma, and funds research to improve and discover the cause and cure.
Celiac Disease Foundation
Celiac Disease Foundation drives diagnosis, treatment, and a cure for celiac disease through advocacy, education, and research to improve the quality of life for all people affected by gluten-related disorders.
National Multiple Sclerosis Society
The mission of the National Multiple Sclerosis Society is for everyone affected by multiple sclerosis to live their best lives as we stop MS in its tracks, restore what has been lost and end MS forever. As the gathering place for the MS community, the Society mobilizes all human and financial resources to ensure that people with MS and their families move their lives forward, while funding cutting-edge research, driving change through advocacy, facilitating professional education, and collaborating with MS organizations around the world.